The Costello Syndrome Family Network works actively with a team of researchers from the U.S. and around the world.  We have funded our first research grant and set money aside each year for our research fund.  We seek to unite families, researchers, and professionals to promote research, awareness, and understanding of Costello syndrome.  At our biennial conferences, families have the opportunity to participate in research studies and to meet the experts to get their questions answered.

Check out the following areas:

Research Projects


Professional Advisory Board (PAB)

About the Professional Advisory Board (PAB)

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