About Costello Syndrome Family Network

The Costello Syndrome Family Network (CSFN), founded in 2001, is a nonprofit 501(c)(3) family support organization that works to promote early and accurate diagnosis of Costello syndrome, while raising overall awareness of the syndrome, promoting research into the causes and manifestations of the condition.

CSFN’s mission is to overcome the challenges of Costello syndrome. CSFN helps assure that those with Costello syndrome and their families have the tools and support needed to live lives that are as full and as healthy as possible in order to reach their maximum potential.

Costello Syndrome Family Network
1702 Tyndall Drive
Panama City, FL 32401

Charity EIN is:

Contact us at:
1-848-228-CSFN (2736)


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